Advancing treatment,
improving lives
The FOXP1 Medical Research Foundation is committed to advancing rigorous, innovative medical research to discover treatments—and ultimately a cure—for FOXP1 syndrome.
What we doOur foundation funds and supports scientific studies, fosters collaboration among researchers, clinicians, and families, and advocates for faster pathways from discovery to therapy. There are currently no therapeutics to treat FOXP1 syndrome. Our goal is to improve quality of life and long-term outcomes for all individuals affected by this rare neurodevelopmental disorder.
A rare neurodevelopmental genetic condition
Almost all individuals with FOXP1 syndrome have delays in speech, language and overall development. They also may experience a wide range of other physical difficulties. With the right therapies and support, many individuals make important progress and improve their quality of life.
We are parents, scientists, doctors, and industry experts
Help us advance our research
There are many ways to give to the FOXP1 Medical Research Foundation. Learn more about the ways you can support our efforts.
“The science is at a place where life-changing treatments are within reach for our children.”
Rare disease parent/industry expert